Our appointment with the cranio-facial team and our plastic surgeon was to be a dreary affair where we talked about the structures around The Boy’s mouth to steel ourselves for the journey ahead. It seems they were expecting his pre-maxilla to require some intervention to bring it closer to his face before the surgery on his lip could commence. They had already ruled out using a kind of bonnet to provide traction, and so were planning to discuss various appliances which would use plates and screws over the course of several months to pull this bit of flesh back toward his mouth and into a position where it would be able to be integrated into a surgical repair. This would, of course, make feeding all the more difficult and would in all likelihood undo much of the progress he’s made. Plus, it would be darned uncomfortable.
Well, jaws dropped and eyebrows soared when they saw our Will. For, it seems, this dreaded nasal canula, which has delivered oxygen to his nose for the past month or so, has somehow, inexplicably moved that bit of flesh into perfect position. This tube of prongy silicone that we have plotted against has actually provided the perfect traction. Our frustration with his tiny dependence upon oxygen was, in the end, stood on its ear. For the very thing that we have cursed has turned out to be a blessing.
So once everyone had come by to shake their head and stare in wonder, we were told that we could go ahead with his lip closure once he’s recovered from his second heart operation. “We don’t need to see him again,” they said with relief and joy, “just let us know when you’re back in the Cardiac ICU, and we’ll talk then.”
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Wow! Praise God from whom all blessings flow.
Tom
Ain’t it sweet, how He’s been carrying you and Will all this time. One more glimpse of the Kingdom.
Our GREAT GOD moves in mysterious ways!PRAISE HIM
Dad
What wonderful news. There again
I say we don’t always understand why things are like they are. But we are told to put our Trust and Faith in God and he will take care of us. I truly beleive he is watching over You, Stacy, Ella, & Will. There again his ways are not ours. We will continue to pray for all of you and that Will’s
second heart surgery will go well.
All my Love and Prayers,
Amen! Great news! -Miriam
Wow! That’s beyond wonderful! Praise our loving and providential God.
Mike, that is awesome! This song was our theme as our own little 2 pound premie daughter cleared hurdle after hurdle causing many head shakes and shoulder shrugs:
Wonder by Natalie Merchant
Doctors have come
from distant cities
just to see me
stand over my bed
disbelieving what they’re seeing
they say I must be one of the wonders
of god’s own creation
and as far as they see they can offer
no explanation
newspapers ask
intimate questions
what confessions
they reach into my head
to steal the glory
of my story
they say I must be one of the wonders
of god’s own creation
and as far as they see they can offer
no explanation
I believe
fate smiled and destiny
laughed as she came to my cradle
“know this child will be able”
laughed as my body she lifted
“know this child will be gifted
with love, with patience
and with faith
she’ll make her way”
people see me
I’m a challenge
to your balance
I’m over your heads
how I confound you
and astound you
to know I must be one of the wonders
of god’s own creation
and as far as you can see you can offer me
no explanation
I believe
fate smiled and destiny
laughed as she came to my cradle
“know this child will be able”
laughed as she came to my mother
“know this child will not suffer”
laughed as my body she lifted
“know this child will be gifted
with love, with patience
and with faith
she’ll make her way”
Wow. Wow. Wow.
ryan expressed my sentiment exactly.
Great news.
Gee wilkrleis, that’s such a great post!
what wonderful and happy news for you guys! thankful for another good day…
jen
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